What to do with advance care planning?
It is useful for everyone to think in advance about his or her care preferences: advance care planning.
It is always useful to pause and think about what you find important in your healthcare. Whether you are healthy or sick.
If one day you can no longer express your wishes yourself, for example in advanced dementia or coma, others sometimes have to make difficult decisions on your behalf. It becomes even more difficult if those close to you do not know your opinion.
Thinking about your wishes and preferences for your future care, and talking about them with loved ones and healthcare providers, that is advance care planning.
How do you get started?
Cards 'Life Wishes'
Read moreThink
It is best to start early care planning well in advance . In any case, start before you are no longer able to do it. What is important to you in the future?
Think about...
- you wishes as a competent patient ( you are able to express your will and preferences yourself, and to realistically assess the consequences of your decisions)
For example: What does quality of life mean to you? What is your position on euthanasia? Who do you want as a confidant to assist you? - your wishes if you become incapacitated (you are no longer able to express your will and preferences yourself, for example in the case of a coma or advanced dementia)
For example: Who do you want as a representative to exercise your rights as a patient if you are no longer able to do so yourself?
Speak
Discuss your desire to plan your future care with your treating physician and with family and/or friends.
Ask the person you choose to be your representative. Every moment is good to start a conversation.
Capture
Write down your thoughts about your preferences, values and wishes.
- You can write down your wishes as a competent patient on a simple sheet of paper.
- You can record your wishes as an incapacitated patient and your preferences after your death in the form of advance directives.
Ask for help where necessary. Also record the name of your desired representative and confidant. You can do this via existing forms. Keep all documents in a safe place.
Do you have questions about how to prepare these written statements (formal requirements, content, handwritten or not...)?
- Consult the list of contact points for advance care planning. Ask for help where necessary.
Discuss
Discuss your preferences with your loved ones and your healthcare providers and ask for an explanation if you do not understand something.
Early care planning gives you and your loved ones peace of mind , and provides caregivers with guidance to tailor care to your needs and wishes as much as possible.
Part
Share your recorded preferences and wishes with others who need to know, for example: your loved ones, general practitioner, treating physician specialist, home nurse, psychologist, etc.
Keep the original for yourself and give a copy (with original signature) to others. Have the documents added to your patient file.
Advance care planning is not a one-time conversation, but an ongoing process of reflection and dialogue between you, your loved ones and one or more healthcare providers (including a doctor).
Frequently Asked Questions
Palliative care aims to add life to days instead of days to life.
Cicely Saunders